Stephanie, a devoted mom to a thriving almost 7-year-old daughter, embodies resilience and compassion. Her daughter’s critical congenital heart defect (CHD) diagnosis initially set her into a world of grief and trauma. Navigating through the labyrinth of medical terms and uncertainties, Stephanie found solace in the Heart Community of Cincinnati. This newfound support system of parents sharing similar journeys was a beacon of hope, offering her a sense of belonging and understanding. Today, Stephanie channels her experiences into volunteering with the Congenital Heart Alliance of Cincinnati (CHAoC), striving to ensure that no family faces the CHD journey alone.

From Heartache to Helping Hands: Stephanie‘s Motivation

Stephanie‘s motivation to volunteer with CHAOC is deeply personal. She recalls the relief and comfort she felt upon discovering the Heart Community. The connection with other parents who truly understood her struggles was therapeutic, helping her to cope with her daughter’s diagnosis. “I finally felt heard and not alone,” Stephanie shares. This profound impact inspired her to give back, spreading awareness about CHD and supporting other families navigating similar paths. Through CHAOC, Stephanie found a platform to reach out, educate, and connect with heart families, making a tangible difference in their lives.

Building a Stronger Community: Events and Experiences

In the past year, Stephanie has taken on a leadership role in community outreach for CHAoC. She helped plan the annual golf event and leads the Heart and Sole Walk fundraiser each year. Beyond these major events, Stephanie coordinates a myriad of activities aimed at fostering community spirit and support. From Heart Week and Mother’s Day celebrations to summer picnics and holiday events at the zoo, her efforts bring heart families together, providing much-needed outlets and support networks.

One of her cherished experiences is the Heart Hero Fall Festival, where families gather to celebrate their little heroes in a fun, relaxed setting. She speaks warmly of the connections formed at these events, emphasizing how they strengthen the heart community and offer families a sense of normalcy and joy amidst their challenges.

Getting Involved: A Welcoming Community Awaits

For those new to CHAOC, Stephanie advises starting with a social event or fundraiser to meet other heart families. “If that is too much at first, just reach out and join our online CHD Heart Families of Greater Cincinnati,” she suggests. The organization’s Facebook page and website are rich resources for information and support options, providing a gentle entry point into the community.

Upcoming Events: Join the Heart Family

Stephanie eagerly shares upcoming events where volunteers are needed. The Summer Picnic on June 21 is a perfect opportunity for those wanting to get involved. Volunteers are needed to set up, serve dinner, and clean up, ensuring a smooth and enjoyable experience for all attendees. Looking ahead, the Heart and Sole Walk in September requires a larger volunteer force to assist with various tasks throughout the event.

Additionally, CHAOC frequently organizes kit-packing parties for inpatient kits delivered to the hospital, welcoming families and children to participate. “It’s definitely possible to volunteer as a family,” Stephanie affirms. These opportunities not only contribute to a great cause but also foster a spirit of giving and empathy among children.

Ways to Contribute: Every Effort Counts

For those unable to volunteer time, Stephanie highlights the need for donations, such as toiletries for inpatient kits or toys for the holiday toy drive for CCHMC CICU. Sponsors and volunteers for social and fundraising events are always welcomed, as every contribution helps enhance the support system for heart families.

In Stephanie’s journey, we see the transformation of personal heartache into a mission of hope and community. Her dedication to CHAOC not only uplifts other families but also exemplifies the power of collective support and understanding. Through her efforts, Stephanie ensures that no one walks the CHD journey alone, fostering a resilient and compassionate heart community in Cincinnati.