Heart & Sole

One in 100 newborns are born with congenital heart disease (CHD). CHD consists of an abnormality with the heart structure that exists since birth. Of those children 25% will require heart intervention or surgery immediately following birth. Globally, as few as 30% of babies born with CHD survive beyond their first year. In the U.S., only 50% live past childhood. CHD is approximately 30 times more prevalent than Cystic Fibrosis at birth, and 60 times more common than childhood cancer. There is no cure. Most of those with CHD that have been surgically repaired are not permanently cured and require life-long specialized medical care across multiple disciplines. Many survivors must endure significant physical and cognitive challenges over their lifetime. 

The CHAoC is resolved to overcome CHD. Our work to fund groundbreaking research, global collaboration, and holistic well-being initiatives is critically important. The CHAoC mission is to inspire hope in patients and families impacted by CHD, as well as the medical practitioners that care for them, by helping us build on our history of funding trailblazing programs that improve the odds.